Phil is growing ever more weak and fatigued and sleeping more hours of the day, a blessing in itself. We had a weekend of family and friends visiting and he was able to participate in that. It was incredibly taxing, however.
Yesterday with Dr. Kossman we learned his platelets (at 10K) are dangerously low and put him at risk for a spontaneous bleed so he decided to receive one last transfusion. This was no small decision since it meant spending the better part of the day in the hospital being admitted, typed and crossed then transfused only to go home and sleep for the rest of the day with little interaction. We also decided to begin hospice services. It is a huge relief for me to know that I will no longer be solely responsible for the decisions in the middle of the night and that I will have more help walking my children through this painful transition. As for Phil, his desire to die at home with us can now be made that much more comfortable and achievable. I can see in his entire body since making this decision, that he has begun to relax and let go of the fight. I am relieved for him.
Your comments, prayers and scriptures have been nothing short of manna for our weary souls. Thank you for continuing your vigil with us and for describing to us your love and experiences of and with Phil. My children especially will need to reflect on these stories and comments in the days, weeks and years to come.