We're back in the office again, seeing Dr. Steven Kossman this time around since his old man Charles is on photo safari in Botswana. (I just gotta say I totally dig Chuck's choice of vacation spot, by the way.) Anyway, Phil is due to start another round of chemotherapy today but he's been feeling really crappy this week. His energy has been poor and he continues to have left sided chest discomfort and a weak cough.
A chest xray was done last week which showed a small infiltrate (a haziness) in his left lung but NOT an effusion so he was started on an antibiotic to treat a possible infection. So here we are and he still feels fairly rough around the edges though he's had no fever or sweats, no chills or other signs of worsening infection. According to Phil, this deal in his chest feels just like the other two effusions he's had prior to this, one on his right side and one on his left side. As of about a month ago, his PET/CT scans and bone marrow biopsy were really good so we are a bit confused as to what might be causing this again, if indeed it is another effusion.
His blood counts and lung field exams today were mostly normal. There was some dullness on the left but not enough to stop him from receiving his treatment. The plan was to get the chemotherapy this morning then go over to the hospital for an ultrasound of the lung and tap it if it is an effusion. Otherwise, it's full steam ahead. Keep on beating on this sucker with chemo until it's fully gone.
Phil's ultrasound showed he definitely had a large left-sided pleural effusion. The radiology techs drained off more than 1 liter of fluid and Phil is much more comfortable. The fluid will be sent off again for all the usual studies, including ruling out further lymphoma involvement/advancement. It is a "paranoid" time per Phil. To be on the brink of the BMT and to have this spring up again is very frustrating and disheartening. Especially because it was the tap of his left lung that came back positive for recurrence before. Phil said today that he realizes this is a bit like a "wrestling match" and that no sooner does he get one thing pinned down then he's got another situation popping up somewhere else. There is always a new opponent it seems.
He is scheduled to fly to Atlanta late next week to spend time with his best friends and his hopeful prayer is that he is well enough to do that. Of course, wisdom and discernment about the best choice for his ultimate health is our ultimate prayer request. With the BMT option on the horizon, each decision from here on out bears very thoughtful scrutiny.
Phil is very physically tired from the successive and cumulative toll of 3 (and now a 4th round) of chemotherapy. He is run down emotionally and psychologically after more than a year of chemo/surgery and complications and now, from confronting the daunting list of things that will be required of him for the BMT. Your faithfulness, your cards, wall posts, emails and prayers are keeping us all afloat as we walk through this most difficult of journeys. We continue to rely on you more than you will adequately know. You, the unseen team we look to for strength and determination when we feel depleted. I personally have felt revitalized this week and covet the prayers said in my stead. Thanks Team~
Oh, s**t. I am sorry, sorry, sorry. Praying that all test results are clear and that he will continue to feel relief, both physically and psychologically. This is just the most awful, awful stuff. Crap.
ReplyDeleteGlad you're feeling strengthened - gotta have one of you up for the fight when the monsters come out.
Many prayers for your family. I pray he pins that wrestling partner down for good, real soon. Pray that this effusion turns out to be fine, and you can smack that sucker down on the mat~
ReplyDeleteBefore crossing what looked like the impossible Red Sea, Moses told the people, "Fear Not; stand still (firm, confident, undismayed) and see the salvation of the Lord which He will work for you today. For the Egyptians you have seen today you shall never see again. THE LORD WILL FIGHT FOR YOU, AND YOU SHALL HOLD YOUR PEACE AND REMAIN AT REST."
ReplyDeletePraying that you recognize His powerful, will-save-you Presence with you...that you will fight this battle in His strength. May your rest be real and deep and lasting....and with Victory that you will never see it again. Protection and grace upon the children...and glory to the testimony that you will give in the days and weeks and years to come.
You are all AMAZING!!! What a gift and blessing to know and pray for you...Laurie LeCount Binnewies and family
We are praying, hoping, and believing with all of you. So sorry to hear of this. Love to all of you,
ReplyDeleteJenn, Jeff, and Alexa Joy